遺傳性表皮分解性水皰症（EB）是種罕見的遺傳疾病，病人一出生皮膚就異常脆弱，稍微摩擦就會破皮或起水泡，患者們常被暱稱為「泡泡龍」。他們每日都需要換藥包紮，以維持皮膚的完整並預防傷口感染，這不止對患者是 …
書寫白袍內的真善美，讓醫療的好被看見。
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