據統計，罕見疾病平均需要 7 年才能診斷出來。當罕病患者來到醫生面前，大多醫生都是第一次見到，恐怕也只有在書上看過。而看過也不一定記得，記得也不一定有想到，即使有想到、有懷疑，也常不夠有信心或相應的臨床資源進行診斷。病患在追求診斷的漫長過程中，面臨大量醫源性副作用，及高昂財務支出。
位於肯亞的達達阿比難民營已經存在30年，絕大多數是索馬利亞人。但肯亞政府和聯合國難民署發表聯合聲明，將在 2022年6月關閉難民營，沒有完善的後續安排計畫，難民群體也沒有太多時間能做準備，不僅失去目前不算多的援助，也沒有可持續的解決方案，難民群體會面臨更糟糕的情況。
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